(This is the email I sent to my family but you have become my blog family so I wanted to share with you.)
” Hello dear ones, some of you know that I finally got tested for Vascular Ehlers-Danlos a couple months ago. VEDS is the disease that killed Daddy. It’s hereditary and doesn’t always show symptoms. Many people don’t know they have it until they’re dead. I’ve had chronic inflammation and pain since after I had Michael. It’s gotten worse each year and I haven’t known the cause. I have Endometriosis which brought about the anemia ( I am no longer anemic but still on iron pills until I get to normal levels). Along with scoliosis and other things that came about in my early 20’s I’ve been clueless to the cause and VEDS was the only possible answer I had. Either way it was important for me to know. I’m not sure if EDS skips generations but I will be checking. I wanted to know if I could’ve passed this on to Michael. I’ve been fighting for years to get tested.
So I am very happy to announce that the clinic called and I DON’T have Vascular Ehlers-Danlos. There isn’t a test for the other types but I’ve been told that I’d have to have the same type as Daddy to have it. And he had Vascular. I will be checking to see if VEDS can skip a generation and I pray it doesn’t.
So I am relieved of course that I don’t have a deadly disease (esp the one that made Dad suffer so much). I am a bit confused to why I have dealt with certain health issues at such a young age. I’ve never been in a major car accident or broken major bones. One of my Buddy’s suggested hormones and I need to investigate that because the Endometriosis really messes me up. If hormones are causing inflammation then I’m not surprised. I am trying to eat better but that’s an ongoing struggle.
The doc doesn’t seem too concerned with my health problems. He says that I may have to live with the mystery of it because other autoimmune diseases like fibromyalgia etc aren’t understood completely by the med. profession. He said he didn’t want this to be my life mission. Well, it’s not….living for Christ and ministering to my family is my life mission. I just want to knock out this pain so I can live my mission better. And I want to do it naturally by getting to the cause. So I think my next step is dealing with the Endometriosis. They can’t laser it out because of where it’s at. Traditional meds seem worse than the problem itself. So I need to get serious about some natural remedies and when we get the money have the natural doctor (the one that found out I was severely anemic way back when) do a hormone test over the course of a month.
I was relatively healthy before I got pregnant. Seriously, the Endometriosis, scoliosis, inflammation in my joints and chest etc…all started after I gave birth. So maybe my hormones got completely screwed up in the process? If this all has a simple fix I’m going to be ticked at all the years I suffered and doctors gave me no answers. But of course happy if there is a simple fix because pain stinks.
Okay, I said all that to say thank you for your prayers and to keep praying. My pain didn’t go away because I wasn’t diagnosed with something. I still physically feel the same but now I can move on and have hope for dealing with my health issues. I think I’d be jumping for joy more if my back pain etc vanished when I got the call. I am happiest for my family that doesn’t have to worry about VEDS anymore. I’ll be even happier if I find that there’s no possible way EDS could skip to Michael. Pray for me as I continue in this journey to be a healthier person.
Love to you all and thank you for your support!”
God bless & remember the High King lives! ~Amber Dover